Tuesday, March 27, 2012

Surgery Update and INSPIRING Message

It has been just a little over one week since my hysterectomy. It was quite an adventure! I must have jinxed myself because I told my husband Michael over and over again that I was nervous about the surgery and that one of my biggest fears was having a catheter.

On Monday, March 19th, I checked into the hospital at 11 a.m. and then went into surgery promptly at 1 p.m. It was done laparoscopically (which I'm very thankful for), so I have only three incisions. During the surgery, she found my bladder was in a very odd place and adhered to my abdominal wall. She needed to move it to get to the other area to remove my ovaries and uterus, etc., and when doing so, she noticed a small hole in my bladder. Not a good thing. She called a urologist to assist her and he sutured it closed. The bad news is that I have to have a catheter in place for two weeks! I've had one week with it. I call it/her "Cath-erina." Now one week to go.

For people who are wondering why I had this surgery, it was because I have the BRCA2 genetic mutation which puts me at great risk to get ovarian cancer.

I was in the hospital for two nights and am resting and recovering well. I am sleeping SO much! I've had two days where I've slept for about 19 hours without waking...the beauty of having "Cath-erina." The pain is still present, but lessons a little every day. I find just sitting up and chatting with visitors is painful and my pain increases significantly.

Another thing about this surgery, it put me into what is known as "surgical menopause." And, because of the BRCA2 mutation I cannot go on hormone replacement therapy. I am on a medication to lessen hot flashes, but I still have several a day. No fun.

Now, on to the message. I'll insert it now and comment on it later!

My closest family, friends, and co-workers know I am a HUGE Lance Armstrong fan. I've read his book, "It's Not About the Bike" several times, and most recently when I was diagnosed with cancer myself. My husband and I have been watching the Tour de France for 22 years and were immediate fans when he started racing in "The Tour."

I have a friend who works for Lance and he told Lance about my journey through cancer and some of the difficulties I've had recently. Getting the message from Lance ranks up there with my wedding day and the birth of my children.

Thank you Matt and Lance!!


Monday, March 19, 2012

Another Surgery Tomorrow

Hello family, friends, and blog family,

Yes, I'm having my fifth surgery since June of 2011, when a lumpectomy was performed, and cancer was found. The physician knew by looking at it that it was cancer. I think I saw tears in her eyes as she told me. That was our 22nd wedding anniversary. It's one we won't forget.

Tomorrow I will be having a total hysterectomy. It's being done because I'm BRCA2+, a genetic mutation greatly increasing my chances of getting ovarian cancer. It increases many other types of cancer as well, but my oncologists wanted this surgery done ASAP. I'm nervous about it. And, I'm hungry because I can only have clear liquids today! And I have to do the lovely "bowel prep" so my colon is collapsed, making it easier to perform the laparoscopic hysterectomy. My doctor said she'll look to see if I have adhesions from my c-section (1992, Conor), and I have too much scar tissue she might have to skip the laparoscope and open me up to get to everything. I also asked her to take a look at my appendix while she's in there. My mother had cancer in her appendix when I was in high school, and then 15 years ago she was diagnosed with breast cancer.

She is a survivor as well. I'm now saying I'm in "remission" and a "cancer survivor." The radiation oncologist said I will never be "cured." He said we both need to be vigilant to catch a recurrent cancer when and IF it try to take another go with me. That was not what I wanted to hear. I wanted to hear I would be "in the clear" once I was at the five year mark. It is said to be the best time for a woman with Triple Negative Breast Cancer to have cancer recur. Really, the first 3 years are crucial, to watch for cancer with TNBC. That being said, because I'm BRCA2+, I'll always have to be vigilant about anything that seems to aggravate me for more than 10 days. If "said aggravation" lasts 10 days, I have to call the cancer center immediately.

I am going to have a chest scan on March 26th to see if the nodule in my lung has changed since it was performed in November. Maybe radiation blew it to smithereens. Two days later I get the results from the oncologists. I'm praying it's not cancer.

 For now, I just need to get through tomorrow successfully, and go through recovery, and get back to work. The reason I haven't written as much lately is when I'm done working 3-5 I'm exhausted and I go to sleep. I'll hopefully start to get my energy back and write more about recovery and beginning life anew "post-cancer." I can't wait to walk and run again! I can't wait for spring. We've had a few glimpses of spring here in Idaho, but as of right now, it has been raining for about 24 hours, and it is sleeting in our backyard. It's nearly 8 pm and I'll be heading to bed soon. Nothing to eat or drink after midnight.

We head to the hospital at 11am and the surgery is at 1 pm. I've left packing for tomorrow morning so I can use my nervousness to good use. I'll be back in the blogosphere once I'm feeling a bit better!
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Ok....I'm adding on to yesterday's post. I am SO HUNGRY. My last meal was at Buddy's on St. Patrick's Day! Hopefully it was good luck! 


Now, off to pack.